Christmas Show time

Sometimes children's school shows are a little bit wearing, songs that have been rehearsed to death in the home, recorders out of tune and pushy parents taking up the front seats.

Sometimes they're not. Carys' was a lovely event last week, she was a narrator with a line of importance. It went well, Carys said her line well, with clarity and volume and we sat there pleased as punch. Anyone who's ever met Carys won't be surprised at her performance as she's a young lady who can be a star in her own lifetime if she so chooses.

Georgia has been a different child recently, she's grown into her own skin with a confidence that I worried she would never find. Her sense of humour is wickedly quick and she has her own identity in a world that could be described as bland. She even volunteered to be a narrator for the Christmas play!

This is something that neither Wend or I would have ever believed could happen, volunteering to stand in front of a room full of strangers and speak out loud. Well today was the day. We went with baited breath and sat in the hall on chairs that are way too small for my rather large backside.

There was the traditional waving and smiling and thumbs up as the kids came in and sat in their pre-show places. Then it was show time, the first people on stage were George and two other narrators. There she stood holding on to the hem of her t-shirt a little smile on those lips and a sparkle in her eye. Then she was into her lines, clear and loud and so perfect. Wend had tears in her eyes and I had a massive lump in my throat. It meant so much, after the past two years there she was our Georgie pickle stood with confidence narrating her lines in front of parents and peers alike.

She's just gone to bed and I can't put into words how proud I am of her, so I told her just that.

The show was brill, even after George had sat down, there were shadow puppets and costumes and singing that was way better than it should be for a junior school show. To say I felt warm inside is a massive understatement. What a fabulously lucky man I am.

Other peoples stories

Like I commented last time sometimes it's about other peoples stories and their experiences with cancer and the subsequent treatments. Sorry that's wrong, it should be other peoples stories and their experiences with life. Life is a common theme running through all of us and how we live it and how we see it is entirely up to the individual.

The snow has been an incredible boost to the community, it's slowed people down, it's made people think of others and for me it's been wonderful to see people working together clearing snow and talking about something new.

Mark and I went to the NEC for the motor bike show, I was a little nervous as this would be the furthest I'd driven for ages and it was also minus six as we cleared the car off in the morning! It was minus eleven by the time we were on the M42 towards Birmingham, I thought it was meant to get warmer as the day progressed!

We made it with no incidents, other than the screen washer jets refused to thaw, not surprised really I wouldn't work strapped to the bonnet in minus eleven either!

The show was great with a notable exception, Jason was meant to be meeting us there as we'd bought him the ticket as a birthday gift. Due to the weather he'd lost a couple of days work that week and then the forecast wasn't so good so he decided to stay home. It was a damn shame as he works hard and I haven't seen him for ages and it would have been nice to catch up. But this is what I mean about other peoples stories and experiences with life. No it wasn't life or death and to many it would be just a motor bike show but to Jason it would have been a day out and to me it would have been time with two of my best friends. So it was annoying and disappointing but not to be helped.

Mark and I spent plenty of time sitting on motorbikes, some way out of our reach some that could be within reach and some that I wouldn't touch with a barge pole but it was fun to try anyway. There was a large number of scantily clad ladies brightening up some stands and there was a large number of overweight sweaty blokes dulling the effect somewhat with their leering and over large cameras. I guess sex sells!

Me making a big bike look average! (yes that's facial hair too!)

Mark going reet fast!

The following night was a curry with the biking lot. I don't like calling our christmas do for some reason that makes it less relaxed than just going for a cuzza! Again the weather had an effect, although some of the party had been skiing on a local dam wall and some had been snow boarding further into the peak, some couldn't risk the journey due to kids and babysitters etc. Pete and Rosie made it up from Bristol though and it was fab to see them both, I think in the years I've known them I've ridden with them once, but I've shared pints and tall tales over curry with them several times and it's always a joy to catch up. I had a great time and even without Jim and Nic and Baz and Lucy there were 16 of us which meant plenty of chat and banter flying about.

I came to the conclusion at the end of the evening that if I ever go on a biking holiday with Pete I'll have to be careful about my alcohol intake as there is a massive chance of it getting very messy!

Life is great. I had a check up on Friday, just gone, which went ok except for me having a bit of a cold. So I couldn't finish the tablets which has been a bit of a blow, in fact they gave me some more antibiotics which are great for the cold but not so good for the sleep and the stomach! Sitting in the waiting area at clinic is always interesting trying to work out the dynamics of relationships. Listening to the couple next to me, it was hard not to! It was touching hearing the husband making small talk but adding in the odd reassurance to his wife. She was obviously quite stressed about being there and the reality of starting the cancer journey, she turned to me an asked how I could read in the waiting room. I didn't say it was a cover for people watching, as I was reading! For me I have been there so many times and I feel so relaxed about my situation that I can concentrate on a good book. (I've started re-reading feet in the clouds about the little known sport of fell running and have found my legs moving faster as I walk the dog!) We started talking about the surreal feel of the initial news and the over riding feeling that someone will pinch you and wake you up from a horrible dream. It would have been nice to talk for longer but then my name was called so another meeting of people came to an end. Who knows how her story will pan out, or the young couple who were holding on to each other so tightly, or the young mother who came in with her boisterous toddler or the guy playing on his phone?

It got to me somehow, knowing what I've experienced, I just hoped that they would have an easier time of it. That their story wouldn't be long winded and quite such a roller coaster ride.

Am I so transparent?

Writing a blog has been a fascinating process for me, being honest with my feelings but not pushing my opinion, it's been massively emotional for me and an incredible release. Reading the little comments has been a boost as well, it's been a real support to us knowing people are out there rooting for me.

Reading Gwyn's comment on the last post was like looking into my head which was weird! I'm not known for my patience but I, mistakenly, thought that I was hiding my desire to be back to normal! Obviously not.

It's been a strange couple of weeks with some real highs and some mind focusing lows. The low's have mostly been due to an inane ability I have to look at the negatives, sometimes I just get caught into a spiral of negative thought. Why I don't know, how I break that spiral is never clear to me until Wendy points it out, I have to break a cycle. Usually it's a physical thing with me, go for a walk or go in the cellar and hit stuff, it's a combination of busy head and a body that isn't ready to do all the things I want it to! The recent spiral was broken with a mixture of walking the dog, doing my physio rehab and also sorting some paperwork out. Now this last one is a new one for me but I found it very rewarding, even though it took me a full morning to fill in a form and write a letter!

I called in to work last week and had a wonderful time for a couple of hours, then I crashed and just had to leave. It was as quick as that, one minute happy and chatty next minute I'm quiet and focussed on leaving. It was weird but it was also a good sign that my head isn't anywhere near ready for going back, that said it was fantastic to see staff and kids alike and the positive vibe that the majority of kids gave me was brilliant.

Physically I'm getting much better, it's unusual now that I sleep in the day, my hair is trying to come back (everywhere, which is surprisingly nice). I've been playing in the snow today of which we have a ridiculous amount (14inches) which has been fab. Playing, throwing snow balls, sledging, building a little igloo/snow tunnel and rugby tackling people all without getting out of breath or having to give up five minutes in is just incredible considering I've only been out of hospital for two months.

This is a fact I have to hold onto. I'm lucky like a lottery winner, talking to a guy at the physio sessions he was in isolation for six months, having infection after infection. He went from 16 stone to 10 and has lost so much muscle tone he has to walk with a stick to save him falling all the time. He doesn't seem to want sympathy but he just wants to be normal, I guess that's a common theme with people who've been through an experience like we have.

My normal is being a dad and a husband and a teacher who bikes and runs and does stuff. As it goes I feel like I'm getting there with the husband and dad bit, I so want to be teaching again it makes me ache but first I need to be fit, physically and mentally. So, Gwyneth, I'm going to take Nick size small steps...........way slower than I'd like but probably better in the long run.

Just a little too much. (Dawn, put the kettle on)

I've had a fabulous week, I've felt more relaxed and fitter than I have done for a very long time. I'm still getting tired but it's a learning process, how much I can do in one day and how I feel before the batteries run dry, kind of!

Something has been missing though, my life has changed a little since I had my Hickman line out last week. My daily injection is no longer needed which is fantastic, my belly was looking like a very random dot to dot puzzle. I have had a real mental block about giving myself the injections and I had reservations about Wendy giving them to me. I appreciate she's a trained nurse and that she was happy to do it but I didn't want her to, I didn't want our relationship to change to one of carer and cared for. If it got to the stage that I'd been so ill I had no option then so be it but I wasn't planning on being ill! This meant that I had a daily visit from the district nurse team, not the whole team just one of them at a time!

This visit was as much a psychiatric assessment as much it was to administer the drugs. It helped so much having a friendly face call in and have a bit of a chat, I can understand how important it must be for people who are alone. The team helped me come to terms with coming home, being ill, being better and also about being a complete woos when it came to me doing the injections. They were patient and funny and they did a great deal more for me than just give me injections they started my head healing.

The removal of the line has been a relief for me, I had worried bout how the procedure was going to work and whether or not it was a case of just pull the darn thing out. As it happened it was local anaesthetic into the area around where the line exited my shoulder and a reasonable amount of cutting. The line has a rough area designed into it so the body's tissues can grow onto the line and hold it in place. Well from the grunting and huffing of the doctor and the pushing and pulling on my shoulder I guess my body had done a good job of growing new tissue! Once the connection between me and the plastic tube had been severed it was a gentle pull and out it came, as it was pulled out of my neck the doctor put pressure on my neck to help the vein heal up and so I didn't bleed under the skin. I would have been annoyed to have beaten cancer twice and then bled to death! I now have three stitches and a line on my shoulder which may give me the scar I was wanting. More importantly though I don't get woken up by a sharp plastic clip digging in my nipple every time I roll over in bed and I don't feel self conscious in front of Wend when I'm in my birthday suit. She's never commented or made an issue it's purely in my head that I'm feeling self conscious about it.

This new freedom has allowed me to be a little more adventurous with my days, so along with my physio rehab I've visited work and driven around more than I've done before. I'm also really enjoying walking the dog the smell of the leaves, the sound of the river and the feeling of the seasons changing.

The visit to work was great, seeing people and having a bit of time to catch up but most of all it was the welcome I was given. Having been away for so long you never know how people will react to you. They're busy with their own lives and their own worries but they made me feel so welcome and the number of people asking when I'd be back, it was quite humbling.

Well it had to have a bit of a lump in the smooth running and that came on Thursday. It was my fault, I'd felt great on Wednesday and so I'd done too much. It wasn't the end of the world too tired like a few weeks ago but it was a definite reminder of how I'm not sorted, regardless of how good I had been feeling.

I feel great in my own skin at the moment and have very few if any sad thoughts, until I was watching children in need tonight. A young lad had lost his mum to cancer, he was talking about how brave she'd been having all the injections and the treatment and yet she still passed away. I had a lump in the throat and a tear in the eye when George piped up that I had been brave having all the treatment. I haven't been brave I've just had to accept my lot and get on with it, I've been damn lucky to be honest. I'm still here and I have the majority of my faculties about me, long may it last.

(Oh the instruction in brackets is to a friend of Wend's who complains about not knowing whether to have a cup of tea with her blog up date.)

The start of normal

Normal for us is being out in the peaks walking and scrambling and generally enjoying the great outdoors. So the first morning of the rest of our lives that's what we did. A gorgeous blue sky followed us all the way to Burbage where we walked under the gritstone cliffs and through the heather watching like minded folks enjoying the amazing scenery.

It was the first time we'd taken Bertie on the rocks and we needn't have worried, I think he's actually a grey hound/kangaroo/mountain goat cross rather than a pedigree Border Terrier. The way he scooted about and then bounced over the heather brought joy and amazement. I felt superb scrambling up the cliff to try and catch up with the girls, I couldn't have done it any quicker but I felt great and my heart wasn't trying to burst out of my chest as I'd expected. With few slips and slides and plenty of laughter we were back at the car ready for tea and medals at the local cafe.

This was the scene of my first welling, I could feel my eyes filling and my heart pumping. Looking at my amazing family, sat round eating toast and having their various drinks, we got here. Through it all, all the chemo, the scans the high's and the lows. The blue lights and the crappy food (in hospital), we'd got to the other side and I just felt an overwhelming pride in these three incredible people who I'm lucky enough to call my family. They'd carried on, going to school, walking the dog and keeping the house sorted and all being fed and watered and carrying on with life.

I kept it together, can't be sobbing in a public place! It took it out of me though and I felt flat for the rest of the day, the sobbing was stuck somewhere and it needed out but it's not like a spot that you squeeze it needs a trigger. Charlie was very nearly that trigger when he phoned from New Zealand, I wish I could have sounded happier but I had nothing left and I felt myself going but then the phone went dead. He rang back, it went dead again, he rang back muttering something about the hamsters weren't running hard enough! It was enough though for me to lose my train of thought and for the sobs to remain stuck, probably to Charlie's relief!

They came at Sunday tea, we'd had a lovely day going to the park with Viv and her family and then chilling, watching the rugby and just pottering round home. I'd taken the hound for another walk just round the block but I felt capable and really enjoyed the feeling of the air in my lungs and the warmth in my legs. So we're sat round having had a beautiful roast chicken and were just tucking into some pudding when they came. Wendy saw them coming and I tried in a way to stave them off but they came anyway. This time I knew why, I was looking at George and thinking how grown up she's becoming how much has changed since the start of round two. How fabulous it was to take the girls to a restaurant on Friday and the way they behaved. How I'm going to get to see them grow some more, this is it, I get to see my family blossom and grow. Whether I agree on boyfriend choices or come out with the immortal line 'You're not going out dressed like that' I don't know and to be honest I don't care because unless I get knocked over by a bus (other forms of mortality available!) I'm going to live more than was expected. The feeling that my life is extended is weird and wonderful at the same time, I just don't want to mess it up.

Done it

I'm in remission, again! Liked it so much I thought I'd do it twice!

The scan has shown that the lump has reduced in size, the nodules on my lung have disappeared as they hoped they would, the liquid round my heart has gone but has left a thickened sack around the heart and my liver is a bit fatty. Fois gras anyone!

It's not sunk in yet and I haven't sobbed but I will and I'll bloody well enjoy it. My head feels like it's going to explode with all the pent up angst and my heart feels like beating out of my chest.

I owe so much to so many and the hearts and thoughts have given so much. My wife and kids have always been my raison d'etre and the look of relief on Wend's face when we had the news was magical as was the reaction of the kids when they came home from school. Carys wanted to squeeze and squidge me, George seemed happy with a hug but there'll be plenty more of those.

The big boss (not Wendy!) says I'll be in trouble if I break my arms cartwheeling! Mum sobbed, Viv sobbed, Dad hugged and hugged as did Amanda, Belinda squeeled and Mark was overjoyed. After having to give shitty news out for so long it's fab giving good news for a change.

Going to go for a curry and a couple of shandies tonight, a little celebration. This time remission feels right, it feels like it has a permanence to it as though the little bar steward is beaten. Whether it is or not only time will tell and that'll always be in the back of my mind, but for now I'm going to enjoy life for as long as possible.

Fireworks and friends

The torchlight procession was lovely and the the fireworks were excellent, the food queue was rubbish. It's the one thing that let down the evening, it didn't flow and was too slow, it's not a massive problem but it meant that I spent more time stood waiting than being with Wendy and the girls.

I felt good Sunday, my legs knew I'd been walking and standing for longer than before, but I felt great. I so looking forward to the evening, beer and chat with my two best friends. The Hillsborough Hotel is a weird little pub which has it's own brewery attached to it, it's the sort of place that has live music. In fact there was a group of people playing folk music in the conservatory at the back while we chatted and laughed and shared stories, some old some new. Mark and Charlie had bought me a brilliant black and white painting, ink on silk, of Stanage edge. Emotive and beautiful it made me think of times walking and biking on the edge with friend and family. trying to catch Mark riding down the bridleway and getting to know Veronica on her first visit to the UK while watching the girls jumping from rock to rock.

It's not big but it's special and it meant so much knowing who it was from. The beer sank really smoothly and the banter was light hearted and witty, we even had a Barry join us which added another dimension as he has witnessed Charlie being tipsy on more than one occasion!

My head was surprisingly good the next morning, much to my amazement, perhaps chemo stops hangovers........not something I'm going to research too much! My second physio session was superb, I was buzzing with endorphins afterwards and wanted to take on the world. Something had changed, be it in my mind or my physicality or both but I worked harder than the week before but it was easier to do. I could lift more and I lasted longer on the aerobic exercises and my breathing was easier too. It just gave me so much confidence and such a high.

My high was tempered slightly by a scan the next morning, a tickle in my throat prompted my to stay and get it checked out. So I spent the morning giving blood and breathing in and out to be told all was well. I have my consultants voice ringing in my ears warning me of being complacent about tickles and coughs. It was no bother and at no point was I made to feel as though I was being an inconvenience to anyone. As I was leaving I had to squeeze through a group of people on the corridor, they were obviously the recipients of the worse news possible. There is a look in the eye, an acknowledgement of the fragility of life. It brought me back to my own reality and that the scan I'd had that morning will bring some sort of closure, one way or another. Up until that point I'd had only positive thoughts about it's outcome, even now I'm having positive thoughts. I've been walking the dog and thinking about work.

It'll be what it'll be.